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Welcome to the international network of groups supporting those affected by ectodermal dysplasia (ED) syndromes.
Please click on your country name below to find your national support group.
EUROPE
Austria/Germany
- Selbsthilfegruppe Ektodermale Dysplasie
Belgium (Email)
Denmark
- Ectodermal Dysplasia Denmark
France
- Associacion Francaise Dysplasias Ectodermiques (AFDE)
Italy
- Associazione Nazionale Displasia Ectodermica (A.N.D.E.)
Netherlands/Belgium/Luxemborg
- Ectodermal Dysplasia the Netherlands
Norway - Norsk ED-forening
Spain
- Asociacion de afectados por displasia ectodermica (A.A.D.E.)
Sweden
- Svenska Ed-foreningen
Turkey
- Ektodermal Displazi Grubu - Turkiye
United Kingdom
- Ectodermal Dysplasia Society
NORTH AMERICA
Mexico (Email)
USA
- National Foundation for Ectodermal Dysplasias
OCEANIA
Australia
- ozED
New Zealand (Email)
AFRICA
South Africa (Email)
- FEDIA
ASIA
Singapore (Email)
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This website has been developed by the UK ED Society. If you would like to add a link to your national ED society's website or
email contact or wish to amend your current society's details, please contact the UK ED Society Office.
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